Sweet Sadie is never far from my thoughts. I sooo want her to find a family. She has OI -osteogenesis imperfecta-brittle bones. There are treatments here in the USA. There is an IV treatment that she will need every couple of months that will help with bone strength and bone pain. She will probably need a surgery to put rods into her long bones to make them stronger. She is VERY tiny. She is only 18 pds and 25 1/2 inches tall at age 7. She will always be a little person. But she is said to be very smart. In the US people with OI live full, independant lives. Please share her with the world. She is listed on Reeces Rainbow.
Diagnosis: Osteochondrodysplasia with defect in the growth of the tubular bones and the spinal cord; Osteogenesis imperfecta; Albumen-caloric malnutrition Third-Fourth degree; Hirschsprung disease (Congenital megacolon); Calculus rhenis dextra; Congenital megacolon; Asthma with prevailing allergic component; Good cognitive development.
Sadie is a beautiful little girl who has suffered in pain for most of her life due to her medical condition. Her bones are very fragile and she’s suffered many broken bones over the years. She is not receiving the treatment options that would be available to her if she were in a family. She is a very sweet and smart little girl who makes the best of her physical condition. She talks very well and enjoys having conversations with the staff. She goes to the day care center each day and she is described as the “mother hen” because she will remind care givers that they need to change a child’s diaper or feed a child his bottle or that they need to pick up the crying baby. She tries to keep them all in line! She can identify her colors, some animals and shapes. She’s receiving instruction from a special education teacher that comes to an orphanage. In an effort not to cause her physical harm, the staff limits her movements and how much they carry her around. She spends most of her days in a stroller. She can use one of her arms to hold on to items and wave hello. She has recently learned to feed herself and she’s very proud of this accomplishment. She has a very good personality and is very friendly to all of the children and staff at her orphanage.
We have several photos and videos of her that were taken in October 2012.
Because we only have this child’s file for a short time, she will not be able to receive donations until a family is found for her.